Posts Tagged ‘Deafness’

I Was 87 A Deaf Womans Ordeal of Misdiagnosis Institutionalization and Abuse

Thursday, February 19th, 2009

I Was 87 A Deaf Womans Ordeal of Misdiagnosis Institutionalization and Abuse



User Ratings and Reviews

3 Stars Unemotional Chronicle
This is an excellent recounting of the events of a life, but it is largely unemotional. The horrors of the primary school are not fully documented, leaving the reader with the impression that it must not have been all THAT bad - it was horrific, of course, but we don’t see enough examples to really feel sympathy. Additionally, we never learn many personal things about the author, such as how she feels about her deafness (although this probably results from her stunted emotional growth) and why she felt compelled to write the book.

It is a good book, however, and if it were not so difficult to track down I would recommend it to anyone interested in the subject matter. But because of the controversy surrounding its first printing, “I Was #87″ is expensive and hard to find. Upon finally obtaining it, some readers may feel as I did - that the effort was greater than the book warranted.

5 Stars great book
I was so touched when I read Anne’s book. She went through so much and I cannot tell you how brave I think she is. I wish her all the best. Thank-you Anne. Carole

5 Stars On Eagles’ Wings
Anne Bolander suffered from congenital hearing loss which her paternal grandmother attributed to prenatal exposure to a certain medication. Anne and her twin brother, Peter, born in 1954 become part of a large family. Sadly, their mother dies in 1957 and Anne has trouble navigating in the hearing world. Unable to remain in preschool because of her hyperactive behavior and inability to hear directions, her father, stepmother and paternal grandparents are ill-equipped to meet her needs.

Misdiagnosed as retarded in October 1959 at Johns Hopkins, Anne then serves a five-year sentence at the Stoutamyre School. The “school” sounds like a medieval torture chamber; the children are not educated in academics nor taught self-care. Margie Stoutamyre, the school’s director made, in the words of Anne’s co-author, Adair N. Renning, Nurse Wretched Ratched of “One Flew Over the Cuckoo’s Nest” infamy look like Mary Poppins. Dickensian workhouses pale in comparison to this place.

Children were beaten by Margie at the drop of a hat; if one so much as looked at someone else being beaten, they, too received a beating. Belts, whips and a board with holes were used; children could only use the bathroom three times a day and even then Margie allotted them a certain amount of time which she monitored with a stopwatch. Illnesses did not exempt one from beatings. In one memorable passage, Anne was forced to eat another child’s vomit simply because she saw him vomit at the table.

In addition to the beatings, children were locked in the root cellar for days; kept in a windowless seclusion room and even strapped to a chair. Anne Bolander literally survived in hell. Mealtimes were rigid affairs where one had to eat in a certain way and keep a straight spine at all times. Failure to do so resulted in beatings. Anne describes how some children were literally beaten to death and she even recounts how she saw a boy being pounded to death simply because he had diarrhea.

Her grandmother was the only person who was kind to her. In 1964 she takes Anne out of Stoutamyre for a few days to enjoy the World’s Fair. By 1965 Anne’s father and stepmother have her discharged. Anne, in her words has exchanged one Margie for another. Pat, her stepmother treated her in the same brutal and erratic fashion that Margie did. The only girl in a houseful of brothers, Anne concluded that being male was the way to survive and that “love” meant “being beaten” because she had been told by Pat how much Margie “loved” her.

The one bright spot in her life during that period was the 1965-1966 school year she spent at St. Mary’s. Kind, loving nuns nurtured her and helped heal much of the harm that had been inflicted upon her. Sadly, she is forced to leave the place because her father has been transferred to another state.

Anne’s secondary and adult years are marked by social unawareness. She is easily mislead by those who are not well meaning and this pattern of gullible trusting follows her into the workplace. She thinks the nickname “Retard” is an honor because she wanted a nickname “like the other kids,” not realizing the stigma attached. She steals gifts so as to gain popularity and is willing to do anything to have people like her. While understandable, the results are no less devastating.

Anne graduates from high school in 1974 at the age of 20. She spends a summer in a hospital training program at a college in N.Y., but finds that the adjustment was more than she was then able to make. Anne exceeds her father’s low expectations of her by not only graduating, but buying her own car and paying for the insurance herself after taking driving lessons. She spends the next number of years living in her own mobile home and with friends, some of whom use her.

Luckily, Anne meets angels, such as Ruth and Glenn, who help her navigate tricky social terrain. Ruth encourages her to fix herself up; Glenn tells her what certain obscenities mean so she will no longer fall prey to the rude and mean spirited jokes her co-workers play. In time, Anne learns these things.

Setbacks occur, such as when Anne is raped by her father in 1979. She spends December of 1980 in a hospital, sorting out the problems in her life, starting with Stoutamyre. By the time she is released in early 1981, Anne is ready to put her life together. She moves out of one bad household where she was being monetarily exploited; becomes active in the deaf community and reconnects with her youngest brother. In March of 1984, her father remarries and Anne has by then realized that with the exception of her youngest brother, she has to cut her losses where her family is concerned. The final blow was when her father and stepmother argued over her brother’s surgery when her father said he was not going to spend any money on his son as he was no longer a child.

A hard, intense and much needed book, Anne is the voice of inspiration. She has survived in hell and, like the phoenix risen up out of the ashes. This book makes me think of the passage from Scripture and related song, “On Eagles’ Wings.”

5 Stars You’re a wonderful person Anne!
I am not a fan of reading books, but the title of this book caught my attention. I could not put this book down once I started reading it and finished it over a weekend. I recommended this book to my entire family and I hope everyone gets a chance to read it. I was so moved on how Anne survived through all of the horrible obstactles she faced. It is sad to think that all of her “supposeable friends” during that time in her life took advantage of her the way they did when she needed them the most. I feel like I know her and forever I will think of Anne. I wish her the best and I hope the future for her is the most rewarding, for she has earned it!!

5 Stars A 5 star story that will change your life forever
I was #87 is a true story, neither my daughter or I could put this book down until we finished it. It is about a little girl who was severely abused and also diagnosed as being retarded when she was actually deaf and of above average intelligence. The determination and survival of this child is so riviting and also inspiring at the same time. It makes you thankful for what we do have in this life. You will realize that the day to day things we might think of as obstacles or problems are so trivial. I would reccomend this book to everyone. There is a limied supply since it is out of print but it is available through the library also.

Buy/More Info

Not Deaf Enough Raising a Child Who Is Hard of Hearing With Hugs and Humor

Thursday, February 12th, 2009

Not Deaf Enough Raising a Child Who Is Hard of Hearing With Hugs and Humor



User Ratings and Reviews

5 Stars This is a MUST READ for parents of hard of hearing children
This no-nonsense book is filled with practical, useful information. I highly recommend this book to all parents of hard of hearing children.

As the parent of two hard of hearing children, I have read my share of books about deafness. This is one of the best.

Amazon says the book is out of print, but I checked with the publisher …and they say they have just reprinted it and it should be available soon.

5 Stars Practical, Focused Help for Children with Hearing Problems
“Not Deaf Enough” (the title is devastating in itself,can be read on at least two levels. The first is obvious. The author, mother of a child with hearing deficiencies, gives the reader an account and the benefit of her and her famly’s experiences with the system proved deficient. The advice is practical and focussed and comes from an intelligent, tenacious, loving, resourceful and articulate woman. Candlish pulls no punches and does not pussyfoot around the problem. If you are fortunate enough not to have had a major challnege of this sort in your family, then read the book from the perspective of someone who felt that the outside world should get a return on her and her family’s investment. With any luck, this book will inspire others to give help and support to others less fortunate. There should be more books written such as this written so clearly. A third level, of course, is that the book is also a character sketch of someone who is playing the hand that she has been dealt without whining and without asking for a new deal.

5 Stars A great reference and learning tool about hearing problems.
I have just finished reading this book. I have read it cover to cover twice and I will return to it from time to time when I’m working with hearing impaired clients. I have placed it on the shelf with my nursing journals and texts for future reference. I strongly recommend that Health care and education professionals read this book as it is a great reference and learning tool for anyone who works with hearing impaired clients. I would like to see it be required reading for nurses and teachers before graduation. Patricia Ann Morgan Candlish is not only the author of this book but has lived with a child who is “not deaf enough”. She tells her story of how it is and was to raise a hard of hearing child. She discusses her personal diffculties in obtaining a diagnosis and her future roadblocks in achieving satisfactory therapy in rural Ontario post diagnosis. This book describes numerous personal experiences from a parents’ point of view and would be a wonderful asset to any home or school library. The author portrays in detail, and with humour,I might add the challenges of day to day living with a hard of hearing child. The book is well laid out; each chapter is full of material starting with the stages of grief, incliding denial and anger at being blessed with a “not so perfect baby.” As the book progresses she describes the formal and informal testing, the anatomy of the ear, hearing aids, financial stresses and sign languages versus speech reading. She describes the symptoms of hearing loss and indicators for hearing testing from the US National Institute of Health. It goes on to depict the management of temper tantrums, difficulty with education, schools, and basically how to deal with health care and educational professionals. Updated information is also available on teaching aids such as toys, books phones and computers. I would recommend this reading material not only for those working with a child who is hearing impaired, but for those working with the hard of hearing of any age. The information in this book is invaluable to all professionals of heal care and education.

5 Stars PAM’s Sister who is a Teacher Reviews Not Deaf Enough
A very worthwhile book. I had a chance to reread your book this summer and I found myself learning even more the second time around.(Actually the third time if you count the manuscript.) I always knew your life was not easy but I didn’t know just how difficult it has been. You have not only coped beautifully but managed to produce a very worthwhile work out of all your difficulties that will benefit others. Congratulations. I’m lucky to be your older sister. Your book is so easy to read, even the technical parts. I think it should be required reading for everyone in the education field. I loved the way you interspersed it with pictures. I have always been amazed at how you taught Reid to talk. You done great SIS!

Buy/More Info